Survived By

I see your name in the newspaper. The photo next to it is unfamiliar to me, you're smiling but I don't know what at. I've seen glimpses before. A photo from a Christmas before I was even a thought, one of you in a kitchen with yellow appliances and a patterned, laminate floor. My mother…

Advertisements

The Lifelong Work of Acceptance

In dealing with a disability, like many things, one of the hardest steps is acceptance of the situation. I believe a couple years after my diagnosis, I did find acceptance of it. Understanding that this is something that I will live with, likely, for the rest of my life. But at fifteen years old, it's…

When Things Aren’t Good

When things aren't good, I don't usually share much. I wait it out. Make the changes I need to, go to the doctors appointments, follow orders. But the last couple weeks have felt like too much to handle. What is there to really do when you have a week until you can see your doctor,…

Fear and Health Care

Health care has been on my (most people’s) mind a lot lately. I’ve been thinking (panicking) about how the upcoming changes to the Affordable Care Act would be effecting me and those around me. While considering this, I thought about what I could add to the conversation. There’s so much out there already: opinions, statistics,…

A Years Time

Let me preface this by saying that this is my first writing that is not directly related to my epilepsy. I created this blog to write about it, but I felt that there was so much more to my life that isn't just my condition. I think that it is all-encompassing, but not defining. Most…

Growing Up

When I was originally diagnosed with epilepsy, I was not yet doing many of the things I would later discover to be effected by it. I wasn't driving, dating, working, living on my own, or traveling. I was a kid and the older I get, the more things seemed to be touched by it. About…

Unanswered Questions

When being diagnosed with an illness or disease, the biggest desires you have are simple: answers and solutions. What I've realized in the years since being diagnosed is that epilepsy often doesn't come with either of those things. Since my initial diagnosis, I was told that there is no reason why I have epilepsy. It…

Famous Women and Epilepsy

Today is March 1st and you know what that means: the beginning of Women's History Month! So I thought I'd begin the month by writing about a couple of influential women who also share this neurological disorder with me. One of the largest struggles I've found with living with epilepsy is not knowing anyone else…